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Being Sickled Health Foundation is improving awareness, education, advocacy, and practical support for people living with sickle cell disorder across Africa

Growing up with sickle cell meant navigating pain, stigma, misinformation, and barriers that extended far beyond healthcare. After publicly sharing founder Joy Sanni's journey in 2021, thousands of people reached out with similar experiences.
Those conversations revealed a gap that stretched far beyond awareness.
People needed
practical guidanceParents needed
trusted educational resources.Young people wanted
to feel understood.Families needed
hope.Being Sickled was created to meet those needs through education, advocacy, community, and access to reliable resources.


Our educational animations break complex health topics into clear, engaging lessons for everyone including patients, caregivers, schools, and healthcare professionals
Browse AnimationsInstead of searching endlessly online, our partner store, ShopUsefully brings together products and tools that many people living with sickle cell or other chronic illnesses find genuinely useful.
Explore Shopusefully