Being Sickled Health Foundation Logo

Awareness.
Support.
Opportunities.

Being Sickled Health Foundation is improving awareness, education, advocacy, and practical support for people living with sickle cell disorder across Africa

Being Sickled Founder / Representative
Founded in2022
Educational contentviewed by millions
Founder's storyfeatured in BBC, Punch, Premium Times & more
Internationaleducational collaborations

Why we Exist

Growing up with sickle cell meant navigating pain, stigma, misinformation, and barriers that extended far beyond healthcare. After publicly sharing founder Joy Sanni's journey in 2021, thousands of people reached out with similar experiences.

Those conversations revealed a gap that stretched far beyond awareness.

People needed

practical guidance

Parents needed

trusted educational resources.

Young people wanted

to feel understood.

Families needed

hope.

Being Sickled was created to meet those needs through education, advocacy, community, and access to reliable resources.

The Being Sickled community wearing warrior shirts

What We Do

Education

  • Animations
  • Carousels
  • Articles
  • Guides
  • Social media education

Advocacy

  • Public awareness
  • Speaking
  • Campaigns
  • Media engagement

Community

  • Paint Beyond Pain
  • Support initiatives
  • Future programs

Resources

  • ShopUsefully
  • Caregiver resources
  • Product recommendations
  • Hospital preparation
  • Emergency checklist
Educational animation thumbnail

Learning about
sickle cell should be simple

Our educational animations break complex health topics into clear, engaging lessons for everyone including patients, caregivers, schools, and healthcare professionals

Browse Animations
SHOPUSEFULLY

Carefully curated
essentials for life
with sickle cell

Instead of searching endlessly online, our partner store, ShopUsefully brings together products and tools that many people living with sickle cell or other chronic illnesses find genuinely useful.

Explore Shopusefully
ShopUsefully app preview and essential sickle cell products